Local girl with Trisomy 18 captures hearts on social media - WDRB 41 Louisville News

Local girl with Trisomy 18 captures hearts on social media

Posted: Updated: Jul 14, 2014 04:42 AM
LOUISVILLE, Ky. (WDRB) -- A 10-month-old baby girl suffering from a rare genetic disease is working to beat the odds.

Karson is capturing hearts on social media and inspiring local people to help her.

"If there's one way I can reach a lot of people in a short amount of time its facebook," said Casey Friedmeyer, Karson's mom.

Friedmeyer posted a picture of her daughter hoping to get one million likes. It's been shared thousands of times, even got some attention from celebrities.

"It's just so amazing that so many people love Karson and they've never even met her," said Friedmeyer.

Karson smiles and laughs just like any other baby, but she has spent all 10 months of her life connected to tubes.

Friedmeyer said, "We were unsure in the hospital in the NICU we didn't know what was going to happen."

Karson has an extra 18th chromosome, a genetic disease called Trisomy 18. It occurs in one in 6,000 births.

"You get married, want to have a baby, and you never thing something might be wrong," said Friedmeyer.

Less than 10% of kids with this condition live to be a year old, but Karson's family is already planning her first birthday.

"We were afraid that maybe she wasn't going to live but now after surgery I'm just so confident that she's going to live a long time and she's going to do really well and we just keep praying and open for the best," said Friedmeyer.

Karson is not as fragile as she looks, she had open-heart surgery last month and is recovering well.

Friedmeyer said, "She's awake a lot more so she wants to play more and her color looks better she just looks so refreshed."

It gives the Friedmeyer family a sense of relief, one of many prayers were answered.

"You can never go through things alone, it's always easier when you have that strong support from your friends and family and they've just been really amazing,"said Friedmeyer.

There is a fundraiser tonight at the American Legion in Sellersburg. Dinner starts at 5pm with a raffle and silent auction.

For information on donating to help the family:
http://friedmeyerfamilyfu.wix.com/karsonsmedicalfund

For information on the Karson Friedmeyer Fundraiser:
https://www.facebook.com/events/631292830283550/

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