Angelman Syndrome Foundation holds walk to raise awareness - WDRB 41 Louisville News

Angelman Syndrome Foundation holds walk to raise awareness

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LOUISVILLE, Ky. (WDRB) -- It's called Angelman Syndrome and it's a disease that affects 1 in 15,000 children born in the U.S.

But few people know what it is.

"Angelman Syndrome chromosome 15 broken or missing or deleted. And it causes different problems like epilepsy. Most of them are non-verbal. A lot of them cannot walk. They use wheelchairs or use assistance with walkers. They have lots of medical issues," Katonya Brown said.

Families gathered at Seneca Park Saturday morning for the Angelman Syndrome Foundation Walk.

Their hope is to raise awareness about the often misdiagnosed disease and raise funds for research to find a cure.

This is the first time the fundraiser has been held in Louisville.

If you'd like to learn more about Angelman Syndrome or donate to the event, follow this link.

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