Southern Indiana boy with rare skin disorder gets big help from - WDRB 41 Louisville News

Southern Indiana boy with rare skin disorder gets big help from Charlestown police

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CHARLESTOWN, Ind. (WDRB) -- Like any other 5-year-old, Brody Curtis likes to explore.

But in just about every other way, the boy differs from kids his age.

"About 80 percent of his body is covered with an open wound that's comparable to third degree burns," said Heather Curtis, Brody's mother.

Brody suffers from a severe form of Epidermolysis Bullosa, more commonly known as EB. The genetic disorder was diagnosed days after birth.

"It makes just everyday activities for him a lot harder," Curtis said.

His life spent in bandages, a simple touch can cause Brody's skin to come off. He can't walk and likely never will.

"This isn't really his room," Curtis said. "His clothes are in the closet, but his toys are in the living room because everything in here is storage for bandages."

The bandages are changed three times a week, a process Curtis says takes about four hours.

Then, there's the financial burden. 

"Between his medicines and bandages, it's between $25,000 and $35,000 a month," Curtis said.

As a single mother working as a teacher and raising two children, Curtis says EB has taken a toll both emotionally and financially.

She was thrilled to learn about "Beards for Brody," a fundraising effort by the Charlestown Police Department.

The department's Facebook page details the "charity campaign" that goes from Oct. 1 through Jan. 1. The post says some officers "will be donating a portion of their paycheck each week to grow their beards in honor of Brody."

While Charlestown Police didn't want to take the attention away from Brody, Curtis wanted to show her appreciation.

"I thought it was kinda cute that they were gonna do that, because they're not allowed to have facial hair on the job, so they were gonna do this fundraiser," she said.

"Doing this, they're helping to raise awareness for EB, and that's the main issue is to get awareness out there so that other people know."

If you want to help Brody's family, donations can be dropped off at the Charlestown Police Department or at New Washington State Bank under Brody's name.

There is currently no cure for EB, but Curtis remains optimistic that there will be one day.

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