LOUISVILLE, Ky. (WDRB) -- Henry Jones has had multiple open heart surgeries in his young life. At only 4 years old, there's something small that brings him comfort while he's at the hospital — bed sheets from home.

"If you didn't know he was sick, you wouldn't know up until this point, he's just a typical 4-year-old boy," said Laura Jones, Henry's mom.

He's a typical 4-year-old boy who has spent more time in the hospital than anyone can imagine.

"It feels like it takes the ordinary parenting struggles and worries you have as a parent and just multiplies them because he is so fragile," Laura Jones said.

Henry was born with Hypoplastic Left Heart Syndrome, which means the left side of his heart wasn't formed correctly, affecting blood flow. Last week, he and his parents were flown to the Children's Hospital of Philly, the only pediatric lymphatic center in the country.

Before the trip, the doctors and nurses in the Cardiac Intensive Care Unit at Norton Children's Hospital in Louisville have been taking care of Henry since July 25.

"Staying positive during this time is one of the hardest things for some of these kiddos, and so to be able to have a little piece of comfort from home, something that they love and enjoy in their room, really makes all the difference," said Dr. Deanna Tzanetos, CICU medical director at Norton Children's Hospital, said.

Even though he loves them, there was one other thing that brought Henry comfort — bed sheets from home.

"He was more comfortable," Laura Jones said. "And I know it sounds like a small thing, but when you're that little and you're attached to so many tubes and wires and machines, and your body's not working the same way it used to, and just the smallest parts can bring a lot of peace."

The Jones family is now hosting a donation drive, looking for twin bed and crib sheets, and even mattress toppers, for parents who are spending their nights at the hospital, too.

"Earlier today, he said 'I want to go back,'" Henry's dad, MJ Jones, said. "(I said) 'Well where do you want to go buddy?' 'I want to go back to Norton's,' and unfortunately that's more like home for him."

With all the toys and racecars they get to ride around the hospital in, it's just one more thing that could make kids like Henry feel more at home.

If you want to donate to the drive, you can reach out to the family through their Facebook page, Henry's Heartventure, by clicking here.

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